Posts made in April, 2012

From the archives: This week I’m… eating big girl food! (May 1, 2010)

Posted on Apr 30, 2012 | 0 comments

From the archives: This week I’m… eating big girl food! (May 1, 2010)

While we marvel this week at our little three-year old, where was May developmentally at her first birthday? Rewind almost exactly two years ago: we’d been working with May on eating for six months at this point, but she had made very little progress and was losing weight. Step in May’s SALT (Speech and Language Therapist) who taught her to eat. How we take for granted this simple and extraordinarily complex set of skills! Tonight, while you eat dinner, note the passage of your food from plate to stomach: lifting it on to a fork, placing it accurately in your mouth, pulling the...

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The Mystery of May’s Supergirl Suit (UPDATED)

Posted on Apr 28, 2012 | 3 comments

The Mystery of May’s Supergirl Suit (UPDATED)

I suppose it was inevitable given my uproar. About six months ago, when May was fitted for her new lycra AKA supergirl suit, I was told she would not receive another one if she had growth spurt a few months later. Put aside the lunacy of making a medical decision based on financial constraints and focus instead on my uproar itself. If you had been May’s physio, what would you have done? When May received the suit, it was a bit loose around the legs. This goes against the whole principal of the suit – it is meant to be the snuggest fit possible. But, since her legs weren’t...

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Happy Birthday May! You are THREE!

Posted on Apr 23, 2012 | 9 comments

Happy Birthday May! You are THREE!

Six-months ago, when I wrote my bi-annual birthday review of May, I really despaired. I didn’t say so in the post – these birthday posts are times to reflect on progress and celebrate May’s happiness. But, her list of achievements was not all that distinguishable from the six-months previous. When I composed it, I panicked. Was May’s progress petering off? Would she still progress and develop in a healthy way? Six-months ago, just as I was writing that post, May was about to have a stimulation immersion. This after my very troubling discovery that May had been in...

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Learn from my mistake: lock up your strollers, people!

Posted on Apr 19, 2012 | 1 comment

Learn from my mistake: lock up your strollers, people!

A few weeks ago, our beloved Britax B-Ready double stroller was stolen from the front of our house. Even more perplexing, one of the wheels was broken, so how they traveled further than our front gate is beyond me. We were managing to use it – with a bit of trickery – while we waited to hear about a replacement wheel, but I was quite certain that no one would take it because of this. Of course, after, I felt like a complete idiot. Buggies like ours cost almost £500/$850. Why I hadn’t locked it away – when I live in a major, metropolitan city – I have no idea....

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This week I’m… bouncing (VIDEO!)

Posted on Apr 18, 2012 | 2 comments

This week I’m… bouncing (VIDEO!)

Ah… if only all therapy could be bouncing therapy, May would be an Olympian by now. Normally, I wouldn’t recommend a baby bouncer for a child with cerebral palsy. I know that it can reinforce all the wrong kind of movements: for example, hyper-extension of the legs and an over-reliance on the support of the frame rather than garnering strength from their own positioning. (Therapists, if I need to be, please correct me!) So, I don’t recommend it. BUT, I do let May use it. Moreover, I like her to use it because it is one of the only situations (though her standing frame is...

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