Posts made in July, 2012

Okay, but would you still go private if you knew it cost this much?

Posted on Jul 28, 2012 | 21 comments

Okay, but would you still go private if you knew it cost this much?

Here in Britain, it is easy to forget just how much medical care costs. We think of the NHS as “free” since it is, on the point of delivery. Of course, it isn’t “free” – nothing like it. It is no wonder we appreciate the NHS. It is one of the best health care systems in the world, and we never have to worry about being turned away because we can not pay. It must have been completely baffling for people around the world to see Great Ormond Street Hospital (a London children’s hospital where May is seen for her vision) and, most prominently, the NHS...

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Would you pay privately or stick with the NHS?

Posted on Jul 25, 2012 | 11 comments

Last October, May was referred for a routine hip x-ray that all children with cerebral palsy receive. It showed that her hip joints were not developing properly. May’s were displaced by 35% and 40%. If that sounds bad, that’s because it is. It is really bad news. The thigh bone curves into the socket of the hip through the pressure of walking and standing. May does little to none of either of these. Back in October, she did even less. She had no standing frame and a terrible physiotherapist. Now, thankfully, we are one week away from a walker. That’s progress. But, is it...

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Walking and giggling. That’s how we do it. (VIDEO)

Posted on Jul 21, 2012 | 5 comments

Walking and giggling. That’s how we do it. (VIDEO)

At this point, the video of May walking for the first time has been viewed almost 5,000 times. That is a lot of happy tears, people. But, how did we get here? How did we go from a baby who we thought would leave the hospital attached to machines, to a toddler walking in a walker? First of all, mainly it is just luck. (If you can call being a half-brained baby luck… work with me here.) Luck that May loves bouncing. Luck that May has strength and control of her legs. Luck that she was born to us (and I mean that. That’s not ego. There are a lot of children that are born like May,...

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Milestone for May! Her first steps! (VIDEO)

Posted on Jul 18, 2012 | 28 comments

Milestone for May! Her first steps! (VIDEO)

There are moments to cherish. And, then there are moments that shape the current of your life. This is one of those for me. May NEVER used a walking frame before today. This is her, one minute in. I love May. Her world expanded today. Now, it includes a step, three steps – perhaps even a stroll – beyond herself. It’s within her reach. One bounce at a time. *The walking frame we used is called a Kid Walk by Leckey. More to come in a future...

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Ieuan’s first birthday (pics!)

Posted on Jul 16, 2012 | 4 comments

Ieuan’s first birthday (pics!)

Ieuan’s first birthday was on July 5th, just over a week ago. It will sound like a complete cliché, but he really did make me happy. The sound of his healthy cry, was the beginning of a new life for both of us. Another cliché. Who cares? It is beyond my abilities to sum up my love for him. Thank you, Ieuan. Veering entirely from the main subject matter of this blog, here are some photos from his big...

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