Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- April 16, 2014 // 2 Comments
- April 15, 2014 // 2 Comments
- April 7, 2014 // 5 Comments
- March 31, 2014 // 3 Comments
- March 30, 2014 // 2 Comments
- By Irishmama7, April 17, 2014
- By Madgew, April 17, 2014
- By Aunt Carrie, April 16, 2014
- By Ellen Lewis, April 16, 2014
- By Mama Lewis, April 8, 2014
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Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
Okay, but would you still go private if you knew it cost this much?
Here in Britain, it is easy to forget just how much medical care costs. We think of the NHS as “free” since it is, on the point of delivery. Of course, it isn’t “free” – nothing like it.
It is no wonder we appreciate the NHS. It is one of the best health care systems in the world, and we never have to worry about being turned away because we can not pay. It must have been completely baffling for people around the world to see Great Ormond Street Hospital (a London children’s hospital where May is seen for her vision) and, most prominently, the NHS featured as part of the London 2012 Olympic Ceremonies. But, in my house, we cheered.
We were at an equally good hospital, The Detroit Children’s Hospital, with May when she was three months old and saw for ourselves a little boy discharged, not because he was ready, but because his insurance ran out. Such cruelties will never happen to May.
The downside is, that sometimes – rarely – the NHS doesn’t work and when that happens, we are out of luck.
Unless, we go private. This probably seems like the obvious solution. If the NHS doesn’t provide, pay for it. Health is too important to mess around with. I did it myself, and continue to do so, with May’s private physio. It is very costly, but we can’t afford to do anything else for May.
We are at those crossroads right now. May has already waited nine months to see a specialist about her hips. Most readers of the post felt that we should go private.
But, what would you do if you knew exactly how much it would cost? Yesterday, I received an emailed estimate. Here is how it added up (USD conversion correct as of today):
Initial appointment = £250 ($394)
Follow-ups = £175 ($275.56)
Up-to-date x-rays = £242 ($381.07)
Total = £667 ($1050.29)
That does not include surgery. If it comes to that. And, I don’t even want to think about how much that would cost.
The email with the costs, included the specialist’s advice that we wait. He said another doctor is joining his team in September which should alleviate the strain and allow May to be seen as early as October.
Now, what would you do?