Posts made in September, 2012

May’s seizures are back

Posted on Sep 26, 2012 | 5 comments

May’s seizures are back

I would like to say that a seizure for May is unusual, but it is not. When she was a year old, she had over 100 a day. It’s a grizzly fact, and I only mention it to contrast her recent seizure activity. Until late July, she was down to one a month. That is a miracle of modern medicine. This lasted until late July, when she suddenly began to have 10 – 12 a day. We put her medicine up and they went down to about 4 a day. That’s still not great, but better. May’s medicine will need to be adjusted like this for a long time. May eats better now and is gaining weight. More...

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3 things I now know about May (Whaddya Know? Part II)

Posted on Sep 22, 2012 | 2 comments

3 things I now know about May (Whaddya Know? Part II)

Honestly, when I wrote my last post Three things I forgot about May until I read this, and I recalled how limited May’s motor functions were – both small and large – I really thought I’d be writing a very depressing follow-up post. Because, since May ate the teething biscuit in the last post, has she started feeding herself? No. Can she pick up food? No. Can eat solid food, like a biscuit? No. Okay, so a bit depressing. But, let’s not let it get us down. It’s not appropriate to gauge all of May’s achievements like this. She isn’t necessarily...

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3 things I forgot about May, until I read this

Posted on Sep 10, 2012 | 2 comments

3 things I forgot about May, until I read this

Whaddya hear? Whaddya know? Three things I forgot about until I re-read this archive post from January 2010: How loudly May used to snort. That there ever was a pre-teething phase. The endless exercises we tried to help May hold something to her mouth. And, of course, that May is adorable. Never underestimate May’s superior power of cuteness. In all seriousness, I was reminded today to appreciate every moment. Small moments like these are not insignificant. It was that thought which led me back here. Without further ado: This week I’m… using teething biscuits from the...

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One story that has received almost no coverage during the Paralympics

Posted on Sep 8, 2012 | 5 comments

One story that has received almost no coverage during the Paralympics

The Paralympics are here and, at least in Britain and many other countries around the world (America not being one of them) – people see disability in a new light. I went to the Paralympics with my family. I enjoyed being a part of it – but it was not an easy day. May was teething and desperate for a bottle and the Olympic Park is the size of Chicago. “Just keep walking,” I said to my husband. “She’s will stop crying when she has a bottle in her mouth and the chance to sleep.” Which turned out to be true, but “just keep walking” resulted...

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First day of school (pics!)

Posted on Sep 6, 2012 | 2 comments

First day of school (pics!)

School is back in session. May started school with a big grin. She was very happy to be there, which was a change from the tears that were common at the end of the last school year. Over the summer, I noticed that May needed more naps than Ieuan did – unusual for an older sibling. There is a lot of stimulation at school, so I hope a few extra naps will help. It seemed to do on her first day, at least. May is in the Early Years class AKA Yellow Class. All the students have colors for their class’ name. I like Yellow and all it signifies: bright, cheerful, warm. May’s teacher...

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