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Monthly Archives: October 2012

I kicked a doctor off May’s team

October 30, 2012 at 09:36

Mama Lewis

7

An unrelated (but cute!) photo of May, as a Halloween fairy, this week.An unrelated (but cute!) photo of May, as a Halloween fairy, this week.

In an interesting follow-up to yesterday’s post, here is the email I sent to May’s team this week following her annual medical review on Wednesday: Hi everyone, Thank you for meeting with May and I on Wednesday (and a very noisy Ieuan). Thank you, ** for drawing up the care plan. It seems fine to me. […]

If you had the chance to lecture 300 doctors, what would you say?

October 28, 2012 at 22:43

Mama Lewis

11

Something worth celebrating!Something worth celebrating!

This month, I will address a conference of pediatricians in Hull, England. It will be the second time I’ve spoken at a conference, though the first time I was 23 and I delivered a paper on post-colonial literature. I can’t even remember the book I spoke on… so a very memorable speech then. One of […]

Should May use this medieval toileting device?

October 25, 2012 at 21:39

Mama Lewis

17

Should May use this medieval toileting device?

It is not as we had hoped: 1. An attachment to the small toilet adjacent to her room. 2. Conveniently situated in a room, the bathroom preferably, rather than other her bedroom. 3. Compact in any way, or collapsible. 4. Flushable. Is attempting to get May to use the toilet worth dealing with this monstrosity?

Be selfish. Put your half-brained baby down!

October 21, 2012 at 13:42

Mama Lewis

5

May enjoys smelling the herbs in the Hampton Court kitchensMay enjoys smelling the herbs in the Hampton Court kitchens

Life can be very tough with a disabled child. I do several appointments a week, often at hospitals – and these fill my days in a way I would never choose for myself. Parents of disabled children despair at their lack of time, money and love. These three things get set aside in the name […]

May vs The Hosptial, Part 2: The waiting game

October 17, 2012 at 20:51

Mama Lewis

3

The Waiting Game. So long it makes your hair curl.The Waiting Game. So long it makes your hair curl.

A year ago, this week, a solicitor visited us to hear our version of the events leading to May’s brain damage. It was harrowing saying aloud all the moments that continue to torment me. All the more trying because I know it will, most likely, all be for naught. The process is long partially, I […]