Posts by Mama Lewis

Why I’m grateful for socialised medicine

Posted on Nov 24, 2014 | 0 comments

Why I’m grateful for socialised medicine

As a reminder that the NHS is not all grrrrr and is quite a lot of gooood, here’s one from the archive. May’s hip surgery 2013: Praise here to all parents who lovingly pack a bag for their child, knowing they will be cut open the following day. As an emotional experience, May’s surgery was a complete disaster. There is no getting around that. When we entered the recovery room post-surgery, a child was rasping with the force of his own screams. It wasn’t a boy, it was my daughter. I didn’t recognize her. But, it was also a major success. Performed by a surgeon whose...

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Upcoming hip surgery grrrr: Part II

Posted on Nov 23, 2014 | 1 comment

Upcoming hip surgery grrrr: Part II

It’s a universal truth that all parents want to receive as little information possible about their child being cut open and stitched back together. Right? Oh, joy. It’s surgery season. May will receive surgery on her hips this coming Monday. Previously, you may recall that the hospital was refusing to allow us to do her blood test at our local hospital. They relented, thankfully. What would have been hours in the car and pushing her across the length of a huge hospital when I am weak and my immune system is suppressed, turned into a 15 minute drive and 30 minutes in the hospital....

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800 seizures a day: our epilepsy story

Posted on Nov 14, 2014 | 3 comments

800 seizures a day: our epilepsy story

This week on the Firefly Garden, bloggers from around the world are sharing stories about their children and epilepsy. I suppose our story makes for pretty grim reading. But years later, with May’s seizures down to 1 to 2 a day and causing her very little distress, we feel it is a triumph. Here is the post and make sure to click on the links at the bottom to read other parents’ stories: My daughter, May, was born with a severe brain injury. She had seizures every day, from birth. She has taken, at various points, anti-seizure medications including Phenobarbital, vitamin B6...

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What’s happening to May’s hips?

Posted on Nov 11, 2014 | 2 comments

What’s happening to May’s hips?

A year and a half ago, May had a major hip operation. She recovered well. There were some lingering issues — like she still crosses her legs and you can see one of the metal pieces holding her hip bone in place under her skin. Not nice and not ideal, but much better than the pain she had been in. Why did she need surgery at three years old? You probably shouldn’t read this if you are squeamish. In recent months, May has not been doing as well. At the time of her dental surgery, we suspected her pain wasn’t entirely in her mouth and that theory has been proven right. She can...

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Was this year a Halloween fail?

Posted on Nov 1, 2014 | 2 comments

Was this year a Halloween fail?

Every year I dress May up and get her ready to go trick or treating and every year she doesn’t come along. In 2012, it was just the cold and the dark that did it. In 2013, well… May doesn’t understand why anyone would want to go out after dark when they could be cuddling with their daddy on the sofa. This year it was her hip. She needs follow up hip surgery to adjust the work they did last year around her growing body. For the last couple of months, she’s barely been able to stretch out her right leg. I’m chasing it up – but I haven’t received a date...

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