Posts by Mama Lewis

My husband is literally giving the shirt off his back

Posted on Jul 31, 2014 | 0 comments

My husband is literally giving the shirt off his back

…and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. It’s my last day of the first round of my new chemotherapy – one week on, three weeks off. To say I’m thrilled to see the back of this place for a few weeks is an understatement. The chemotherapy day unit is one of the most depressing holes I’ve had the pleasure of being made to wait three hours for a five minute treatment in. Or, spa treatment as I insist my doctor calls it. Which she does. Why not...

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That bastard Leukemia has moved back in

Posted on Jul 25, 2014 | 9 comments

That bastard Leukemia has moved back in

That pissant is back. I have a very small insurgence of cells, but in the World of Cancer there is no small. There is only remission or not. I’m not. Today, I will start chemotherapy. It’s out-patient this time. That’s one “bonus”. Also, I’ve been told this chemo won’t make me sick. I’m guess I’m pleased to know that too. I don’t want to phone/email/text everyone I know with this information so I’m writing here. Plus, it gives me a bit more length to fully explain what is happening. Every time I write something like this and...

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Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a...

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The report is clear: disabled children’s rights are being compromised

Posted on Jul 13, 2014 | 3 comments

The report is clear: disabled children’s rights are being compromised

This week, I attended the launch of the Parliamentary report into childcare for disabled children. Chaired by MPs Robert Buckland and Pat Glass, it took into consideration extensive research by Contact a Family and the personal evidence of parents, local councils and education providers. The report is stark reading. The statistics are truly awful. Children are being denied a right to an education and play, and this goes against the UN Convention on the Rights of Children, not to mention our own British laws. In short, it is illegal. On the night, I was asked to speak again. I pointed out the...

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Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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