Posts by Mama Lewis

I don’t care if it’s £1,000. We should pay for disabled school transport.

Posted on Jan 30, 2015 | 1 comment

I don’t care if it’s £1,000. We should pay for disabled school transport.

On Celebrity Big Brother this week, rent-a-gob Katie Hopkins scoffed at housemate and glamour model Katie Price’s reliance on special needs transport for her son. “With the amount you earn I find that tricky,” Hopkins said, “when you could afford it yourself.” Fans of CBB may have sided with Price, until they heard how much it cost to transport her son Harvey – who has cerebral palsy, autism and is blind – to and from school. He takes a taxi and is supervised by a nurse for the journey. On the show, Price claimed this costs nearly...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 0 comments

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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Kids all access… Tower Bridge

Posted on Jan 19, 2015 | 0 comments

Kids all access… Tower Bridge

When you are confined to a wheelchair, it is hard to imagine climbing to the greatest heights. What am I talking about??? We live in LONDON. Wheelchairs top any view if there’s a lift or a wheel involved. A big wheel – the London Eye.  This weekend we hit new heights going to the Tower Bridge Exhibition. The exhibition allows you to take a lift up to the top of Tower Bridge and walk across a glass walkway over the Thames river. The views are incredible. My three-year old especially enjoyed “the show” which was a film in which  life-sized historical figures bickered...

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The Special Needs Sleep Guide or “Sleep? What the hell is that?”

Posted on Jan 7, 2015 | 2 comments

The Special Needs Sleep Guide or “Sleep? What the hell is that?”

It’s 5.30 AM. Why am I up, you ask? If you are a parent to child with special needs you probably already know. May woke at 2.30 and mewed/cried/sobbed for attention until 3.45. I’m trying to retrain her to soothe herself to sleep so I let her “cry-it-out” a method of sleep training used on babies. You let them cry and extend the amount of time in between going in to comfort them. I lay with May the first time, but after that I held her hand or stroked her face. I left her alone and I waited in my bed for the first sound of her complaints which always seemed to...

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What mountain would you climb for the perfect toy?

Posted on Dec 23, 2014 | 1 comment

What mountain would you climb for the perfect toy?

Does the perfect toy exist? What if your child is disabled cognitively and physically like mine is? Check my bank account. I’ve wasted a lot of money trying to solve this conundrum. And yet, we did find the perfect toy. For my daughter, this is her monkey toy. It is a jungle symphony of noises and songs. It is bright so she can see it easily, sturdy so she can smack it at will and has chunky components that activate easily despite her physical limitations. Yes, perfect. She’s had it since she was a baby and it’s lasted five years now. That’s an amazing lifespan for a...

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