CP Info

What should I ask the hospital regarding May’s surgery?

Posted on Jan 13, 2013 | 16 comments

What should I ask the hospital regarding May’s surgery?

Tomorrow, I have a hospital preparation appointment to establish that May is well enough to go on the waiting list for hip surgery. At the meeting, I can ask questions and – since I was blindsided at the last meeting – I now have about 1,000 questions I want to ask, ranging from How will May survive the surgery? all the way to How will I survive a week living the hospital without Wi-Fi? I’m not sure what is relevant to ask at this point. I imagine there are probably people reading this though who have had hip surgery themselves, or a child who has had major surgery, or...

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3 Half-Brained Genius Awards

Posted on Dec 28, 2012 | 0 comments

3 Half-Brained Genius Awards

The prestigious Half-Brained Genius Awards are coveted across the globe. (TRUE!) They are not given to the major moments that we read about on the news. (Also TRUE.) These are small moments of genius that I read about on blogs I follow, that make me think a parent is awesome. Or, AWESOME-O! As we call it in my family. So here are three big AWESOME-Os! to some pretty spectacular parents of special needs kiddies: 1. Kara and Ali are parents to two little wonders, Sebastian (who has CP) and baby Tallula. Kara wrote a post about their recent visit to London, where they mastered the public...

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Bet you didn’t know this either.

Posted on Mar 27, 2012 | 4 comments

Something slipped my mind this week. Or, maybe I should say it never registered at all. Sunday was National Cerebral Palsy Awareness Day. Yeah, I didn’t know either. I only mention it because it coincided with a couple of pretty horrific news stories. Not exactly cause for celebration. In the first, LaKay Roberts’ mother is told by her elementary school that LaKay is forbidden to use her walker any more. You read that right. Forbidden. The mother videotaped the conversation – and it is edited, and there is definitely some animosity there between her and Special Education...

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How does special needs potty training work?

Posted on Feb 9, 2012 | 13 comments

How does special needs potty training work?

I admit it. My mom worked some kind of voodoo magic over my daughter. Because, it’s not just my mom anymore. I am now 3 for 3 with my daughter on the potty. Now, I only tried once today and twice yesterday, but each time, within 30 seconds, there it was. Pee-pee in the potty. I admit it – and, I’m just the kind of wilful daughter who refuses to believe that her mother might be right. I’m not saying that May is potty trained, or even close. But, the evidence has forced me to confront the possibility that it might, in one form or another, be possible. May seems pleased...

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So, David Cameron, your cuts won’t hurt disabled children?

Posted on Sep 14, 2011 | 6 comments

Well, what of their families then? Cuts to local councils make our lives ever more challenging. Here is a simple story to help illustrate this. One, I think, even Tory ministers can understand. Several months ago, we applied for a disabled parking spot to be placed outside our flat. Our road is one of the few ones near the shops that isn’t permit parking only. It crowds very quickly with cars. May is 2 1/2 now. She is heavy and can’t support her own weight. Most days, I have to park far down the road and carry her across the street and into our house. Along the way, I have to...

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