park3 2

park2 2

park1 2


Category Archives: Visual Impairment

5 simple ways to comfort a sensitive child

March 15, 2014 at 10:09

Mama Lewis


Pumpkin guts!

I HATE THIS! …says May in a million ways every day. May has a lot of sensory issues that could limit us if we let them. But, we want to be a part of the world, not locked away in our house every day. When we leave our house, I can’t control the environment – but […]

When there is no answer

February 28, 2014 at 13:22

Mama Lewis


Photo by Kevin DunnettPhoto by Kevin Dunnett

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various […]

Bad Mother Story (#246,000,001)

August 31, 2013 at 13:44

Mama Lewis


Adorable monkey in glasses!

I’m a bad mom. Months ago – six or seven months ago – I took May to Great Ormond Street Hospital to get her eyes checked by a specialist team. Two years ago, I begged, pleaded and even punched some people out to get her seen by them. (Okay, I didn’t punch anyone in in […]

This week I’m… using an iPad?

March 17, 2013 at 14:29

Mama Lewis


May can't see how adorable she is

May wants an iPad. It’s not because she thinks I deserve to watch more movies. (Though that’s a bonus.) She wants an iPad because it may be the first piece of equipment that really helps her learn to see. May has Cortical Visual Impairment (AKA Cerebral Visual Impairment). CVI is the brain damage that stops […]

What I have in common with Katie Price, glamour model (more than you think)

October 4, 2012 at 22:24

Mama Lewis


Katie Price at home with son Harvey, photo by Zed Nelson

Does this story sound familiar? From an article in The Guardian about Katie Price, glamour model and mother to a disabled son: “I can’t fault the NHS. Even though when Harvey was younger, I thought they were a bit shit,” she says, and thinks about it for a while as the hairdryer roars. “They were shit, […]